Sunday, September 21, 2008

My life with RSD

Hey guys today I am going to talk about my life with rsd. I got hit 16 years ago and the blows were traumatic and damaged my nerve as the hits were across my back and my elbow. That was from 1992 and I was not diagnosed until 2000. So rsd has taken away half of my life. I now have full body rsd and as I posted before it is a debilitating disease and it just gets worse and worse. At the moment I am at the stage where they can't do anything except the neurostimulator which is a small devise that is placed in the lower part of my back to help and reduce the pain.



A typical day in my life is like this. My mommy wakes me up about 7 am so I can have breakfast and then I go right back to sleep. I'll sleep for a couple hours , then the pain wakes me up again. If I manage to get out of the bed any at all I'll walk around inside the house as my exercise, if not I lay in bed all day because of the pain. I'll try to move about but as soon as I start moving I begin to have increase in swelling and its back to bed. I don't do anything except feel pain and cry. This is actually a good day for me.

When I can manage I do graphic design and have opened a shop at cafepress to showcase my stuff and as a fund raiser for my surgery. You can visit this site and have a look www.cafepress.com/jcooldesignz . See you guys in a couple of days.

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