Saturday, September 27, 2008

Excitement after pain

Hey Guys, its 2:39 a.m 27 of September and I am still awake, partly because of the pain I am feeling and the medication for me to sleep still hasn't kicked in as yet. Anyway I am a little bit excited because my nba team the Miami heat starts their training today. Also the season is around the corner. I love basketball and my wish is to meet Shaq and DWade one day. My excitement comes after two days of being in bed and crying all day all rolled up-stretched out-curled up-bent over and everything else. I was feeling so much pain that I was having problems breathing. My little baby brother who is 1 and a half came up on the bed and hugged me and I couldn't believe he knew I was not feeling well. The rain that we had caused the weather to be much cooler and that gave me a flare up. I tried spreading my bed and couldn't finish because of the pain. The RSD causes me to be very sensitive to touch even a light breeze so the fan causes me a lot of extra pain and I can't live without it. Anyways I am gonna get ready a little later to watch some college football, go gators!!!!. See you in a bit, in the mean time live your life to its fullest and make someone smile as you go along it might be the difference maker in their life and the hope to continue to live. Luv ya. God bless.

Sunday, September 21, 2008

My life with RSD

Hey guys today I am going to talk about my life with rsd. I got hit 16 years ago and the blows were traumatic and damaged my nerve as the hits were across my back and my elbow. That was from 1992 and I was not diagnosed until 2000. So rsd has taken away half of my life. I now have full body rsd and as I posted before it is a debilitating disease and it just gets worse and worse. At the moment I am at the stage where they can't do anything except the neurostimulator which is a small devise that is placed in the lower part of my back to help and reduce the pain.



A typical day in my life is like this. My mommy wakes me up about 7 am so I can have breakfast and then I go right back to sleep. I'll sleep for a couple hours , then the pain wakes me up again. If I manage to get out of the bed any at all I'll walk around inside the house as my exercise, if not I lay in bed all day because of the pain. I'll try to move about but as soon as I start moving I begin to have increase in swelling and its back to bed. I don't do anything except feel pain and cry. This is actually a good day for me.

When I can manage I do graphic design and have opened a shop at cafepress to showcase my stuff and as a fund raiser for my surgery. You can visit this site and have a look www.cafepress.com/jcooldesignz . See you guys in a couple of days.